Focus on Advancing Support and Transition with the Fragile X Online Registry with Accessible Research Database (FAST FORWARD)
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- Title
- Focus on Advancing Support and Transition with the Fragile X Online Registry with Accessible Research Database (FAST FORWARD)
- Posted
- Apr 28, 2026
- Comment period
- Apr 28, 2026 – Jun 29, 2026
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- Jun 28, 2026Anonymous AnonymousOtherIndividual📎 Attachment
The commenter is reporting personal safety concerns, including a vehicle incident and alleged "shark attacks," while also claiming to be a victim of identity theft and unauthorized access to their profile. The comment does not address the specific merits or details of the FAST FORWARD registry proposal.
Read comment → - Jun 27, 2026Anonymous AnonymousSupportGovernment
The commenter, identifying as Civilian Personnel of the Federal Government, requests the approval of funding for the CDC's FXS activities in the 2026 Consolidated Appropriations Act. They argue that this funding is necessary to support strategies for earlier identification, medical services, and lifelong support for people with Fragile X Syndrome.
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