Comment from Sherie Szubski
AnonymousSupportIndividual
Summary: Sherie Szubski, an individual living with multiple chronic conditions including MCAS and CVID, supports the modernization of standards to improve prescription navigation and care. She provides a detailed clinical summary of her conditions and treatment needs to advocate for better medical recognition and insurance coverage for complex cases.
Boy am I glad you asked! I was wondering how to steer things towards better solutions for those of us with MCAS, MCAD, Mast Cell Disease. And most of us have more than mast cells as problems. Personally, I have officially been diagnosed with MCAD, CVID & SjS and we suspect I have POTS and hEDS. These diseases with these symptoms exploded post Covid diagnosis. Please, please, please help us navigate better through prescriptions. I have an ER Doctor trying to tell an Immunologist right and wrong and that is just absurd. Please see the attached documents. Personally, I am in a fight to my right for correct care with Medicaid.
Attachments
- Medication_Tracker_Sherie (PDF)
- Medication_Tracker_Sherie (DOCX)
- Doctor_Update (PDF)
- Symptom_Chart_Sherie_v6 (PDF)
- Decision Document for Gamunex-C (RTF)
- Decision Document for Gamunex-C (PDF)
- ! Written_Exceptions_Szubski_OAH_20294 (PDF)
- ! Written_Exceptions_Szubski_OAH_20294 (DOCX)
- ! Szubski_DCBS_CoverLetter (PDF)
- ! Szubski_OHP_ComplaintPackage_v4 (PDF)
- ! Szubski_OHP_ComplaintPackage_v4 (DOCX)