Comment from EllieMD

To Whom It May Concern, Thank you for taking the time to read my letter. Shortly after my husband and I began dating, he experienced what we believe was his first nocturnal seizure. Looking back, we now realize he had likely been having seizures long before that night. Witnessing a generalized tonic-clonic (grand mal) seizure is something I will never forget. The physical and neurological impact is profound, not only on the patient but on the entire family. Over the years, we searched desperately for answers. We endured countless tests, hospitalizations, medication trials, and uncertainty. During one consultation, an epileptologist explained that she believed the affected portion of his brain could simply be “scooped out,” while acknowledging he would likely be left with permanent neurological deficits. We were devastated. The medications available to him reduced seizure activity to some degree, but they also took away much of the person I knew. He was exhausted, emotionally flat, and struggled to function. We questioned whether this was the best life we could hope for. Eight years later, in what began as a completely unrelated journey to improve my own health, I found EllieMD. I had been living with Class II obesity and ultimately achieved a normal BMI. As I became educated through my work with the company, I also learned about NAD+ and BPC. I initially chose to use them for inflammation and gut health. My husband decided to try them as well. The results for him were remarkable. Before beginning this regimen, he experienced multiple focal seizures every day despite taking several anti-seizure medications. Afterward, his seizure frequency decreased dramatically to one or two per week. While this reflects only our family’s experience and is not a substitute for clinical evidence, the improvement in his quality of life has been extraordinary. We feel as though we have our husband, father, and partner back. As a registered nurse, nurse anesthetist, and citizen, I am not asking that these therapies be exempt from oversight. I am asking for thoughtful, evidence-based regulation that preserves access for patients while encouraging continued research into their safety and effectiveness. Patients and their healthcare providers should be able to make informed decisions together, rather than losing access to promising therapies altogether. Our products are independently third-party tested and sourced from a 503A-accredited compounding pharmacy. We have witnessed firsthand the hope these therapies can offer when other options have fallen short. Please allow Americans the freedom to advocate for their own health, alongside qualified medical professionals, while supporting the scientific research needed to better understand these therapies. Thank you for your time, your consideration, and your service to the American people. Respectfully, Whitney Detwiler, RN, MSN, CRNA Alabama